Diffuse Intrinsic Pontine Glioma

October 3rd - 6th, 2019

Chaired By

 Oren Becher, MD, Northwestern University
 Cynthia Hawkins MD, Ph.D., The Hospital for Sick Kids

Important Dates

 08/03/2019 - Travel Form (  )
 09/03/2019 - Abstracts (  )

Venue Information

Geneva National Resort
1221 Geneva National Avenue, South
Lake Geneva, WI 53147


Travel Agent Information

 Meeting #: Refer to your packet.
 Hours: 8:00am – 8:00 pm EST M-F
 Domestic: 669-210-8002
 International : 623-516-6140

About the Forbeck Foundation

 Forbeck Forum Information
 Travel Information
 General Program
 Frequently Asked Questions
 How to donate to this forum

Program Description

DIPG is a rare incurable childhood brain cancer. Unfortunately, the standard of care has not significantly improved in over 50 years with focal radiation being the standard of care. This is in stark contrast to the improved treatments for many other cancers like melanoma, lung cancer, kidney cancer, leukemia, and neuroblastoma. Recent analysis of DIPG tumor tissue has identified some of the main genetic events that drive DIPG formation.

This powerful piece of knowledge, along with other advances such as the development of model systems, and the increasing use of biopsies as part of the diagnostic work-up for children with DIPG will eventually lead to effective therapies. This cannot be done however without foundations like the Forbeck Foundation. The Forbeck Foundation is world-renowned for supporting an innovative discussion forum where approximately 15 scientists, in an intimate setting, have the opportunity to discuss unpublished research results. Bringing together diverse experts together like this, to learn from and challenge each other, is an innovative approach that will no doubt yield real progress for DIPG.

Walk The Lake For Kira Faith

This year the Kira Spedale Foundation is collaborating with the Forbeck Foundation to sponsor a scientific forum to tackle DIPG. Walk the Lake will be the culmination of the consensus meeting. To learn more about the Kira Spedale Foundation please click here. To register for the Walk and/or meeting summary dinner, please click here.

Participant Information

Participant Institution
Oren Becher, MD Northwestern University
Wendy Beguelin Weill Cornell Medicine
Gabrielle Bergers, PhD Leuven Belgium
Kristina Cole, MD, PhD Children's Hospital of Philadelphia
Courtney Crane, PhD Seattle Childrens Research Institute
David J. Daniels, MD, PhD Mayo Clinic
Ira Dunkel, MD Memorial Sloan Kettering Cancer Center
William Elmquist, Pharm D, PhD University of Minnesota
Dolores Hambardzumyan, PhD Emory University
Cynthia Hawkins, MD, PhD The Hospital for Sick Kids
Jeffrey Iliff, PhD Oregon Health & Sciences University
Paul S. Knoepfler, PhD UC Davis Health
Sabine Mueller, MD, PhD University of California, San Francisco
Ali Shilatifard, PhD Northwestern University
Nicholas Vitanza, MD Seattle Children's Hospital / Fred Hutch

Scholars Attending

Scholar Institution
Laura Bazazynski, PhD UT Southwestern Medical Center
Jessica Foster Children's Hospital of Philadelphia
Cassie Kline University of California, San Francisco
Nneka Mbah University of Michigan
Jay Sarthy Fred Hutchinson Cancer Research Center

Airport Information

Milwaukee's General Mitchell International Airport (MKE) is the preferred airport as it is only 45 minutes from the meeting location.

  • Arrivals - Thursday at 1 PM, 3 PM and 5 PM
  • Departures - Sunday at 10 AM and 12 PM

Chicago's O'Hare Airport (ORD) is 1 1/2 hours from the meeting location without traffic. The Foundation can only accommodate 1 pick up per day at O'Hare. If you absolutely must fly into O'Hare (ie: International Flights) the Foundation will have the following pick up times at O'Hare:

  • Arrivals - Thursday at 3 PM
  • Departures - Sunday at 10 AM

Any other arrival times at Chicago's O'Hare airport must be arranged and paid for by the individual. You are welcome to arrive on Wednesday.


The abstracts should be only one or two paragraphs outlining the theme of your presentation and should reflect the objective and spirit of the meeting (see above). Abstracts will be circulated about one week before the meeting. The meeting organizer will start requesting them a month before the meeting.

This forum has been sponsored by The Kira Spedale Foundation. The Kira Spedale Foundation raises funds and awareness to combat DIPG (Diffuse Intrinsic Pontine Glioma), a rare, inoperable brainstem tumor that attacks children.